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Family Support
When a child
is born with a diagnosis of cancer or other diseases that may impact
vision, parents are never prepared to deal with the frightening
reality. Dreams are shattered and families are in crisis as they
"mourn" for the healthy baby they expected. The knowledge
that their child has a life-threatening disease that may result
in visual impairment quickly and dramatically changes initial feelings
of joy and happiness at the birth of a baby to those of shock, grief,
anger, despair, and anxiety about the future. Many parents describe
feeling as though they are on an emotional roller coaster, hopeful
one moment and desperate the next. As one parent so beautifully
said, "What I thought would be the happiest time in my life
turned out to be the saddest."
Through multilingual
consultation and family therapy, we provide skilled professional
assistance to enable a family to cope with the news. Families in
crisis need information and many times do not know where to find
it. We publish books, videos, journal articles, newsletters and
training materials all designed to provide easy to understand suggestions
and coping strategies.
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